Ciao ragazzi,

Recentemente sono andato dai medici e mi hanno informato dell’ePA

al ricevimento. Sono tornato a casa, ho cercato informazioni online e ho guardato l’app offerta dalla mia assicurazione sanitaria. Sebbene affermi di essere sicuro, sono comunque preoccupato e il processo di onboarding sembra richiedere molto tempo a causa della necessità di identificarmi. Se qualcuno ha utilizzato una delle app ePA, potrebbe dirmi se anche per lei il processo di onboarding è stato lo stesso. E che dire della privacy e del consenso? È possibile gestirli entrambi e, se sì, come gestirli?

ePA/ electronic patient records
byu/TwoDumplings ingermany



di TwoDumplings

2 commenti

  1. Offensiv_German on

    Honestly if you have privacy concerns you should just object to the ePA as a whole.

    The ePA was in the news for having tremendous design and security flaws and as of today not all have been indefinitely fixed.

    > and the onboarding process seems to be very time consuming

    Yes the onboarding from what i have heard is extremely difficult and annoying. I just watched this video about it:

    [https://www.youtube.com/watch?v=w_Fb7YaZoUs&t=1284s](https://www.youtube.com/watch?v=w_Fb7YaZoUs&t=1284s)

    For me personally the Techniker Krankenkassen App is supposed to show you your ePA, but that hasn’t been working for the last 2 month.

  2. Hot-Network2212 on

    There are 3 basic options:

    * You have an ePA but don’t use the app or are even aware of it. In this case its basically a database for doctors to write and read from. Most people will fall into this category.
    * You decide that you absolutely do not trust the system maybe because you have some really critical health diagnosis that can by no chance get public. Think of HIV, depression or similar for people working in conservative high performance fields could be a reason for them to lose their career. You can delete any entry made in the ePA if you still want the benefits. Or you can go to your health insurance and tell them to delete your ePA then no doctor can read or write to your record because it does not exist.
    * You want the ePA and use the app to look into diagnostics from doctors and maybe even actively manage what is in your ePA (delete entries, restrict others to be only visible to some doctors but not to others etc). In this case yes the identification process can be lengthy but recently it was decided to make it easier again (might take health insurances a little while to change the process again).

    Personal opinion:

    Yes it is a secure system and I personally do trust it. However, no IT system is ever 100% secure especially not something this insanely complex in this insanely complex German health care system. I personally do not have any stigmatised health entries that would end my life if they were to get public or known to my employer..

    I think the benefit of it currently is not that big but it basically just started and the biggest benefits are still to come years down the line. Some of them you will still benefit from if you only sign up in 20-30 years again for the ePA. Others will then not benefit you anymore simply because you are missing 20-30 years of medical data.

    Personally I believe that medicine in the future 10-50 years down the line in developed countries will be extremely data driven. So basically when we are getting old and actually need medicine statistically the most. I think people without years of medical collected data might not see most benefits of algorithmic medical advances.

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